what is charlie's law?

Charlie's Law, named after a young boy named Charlie who suffered from a rare medical condition, refers to legislation in the UK aimed at improving access to treatment for patients with conditions not currently covered by the National Health Service (NHS). It emphasizes the need for timely access to potentially life-saving treatments and therapies, particularly for rare diseases. The law advocates for transparency in decision-making processes regarding funding and access to treatments. It aims to ensure that patients receive the care they need, regardless of their condition's rarity or cost implications.