Is marfan syndrome terminal

No, it's not terminal in itself, but if the heart and aorta are not monitored properly, then there is a chance of sudden death by aortic dissection (the aorta tearing). So, it is definitely life-threatining. Therefore, someone with Marfan syndrome needs an echocardiogram, MRI, CT scan, or TEE of their entire aorta at least once a year to check for aneurysms and monitor their growth. If the aorta is growing rapidly or the valves are leaking a lot, more frequent monitoring is advised. Taking a medication to lower the blood pressure, like beta blockers. Preventative aortic surgery also extends the life expectancy. With proper monitoring, people with Marfan syndrome have an average lfe expectancy.