Hi,all I can add to this question is that I feel it is quite possible that pots and shy-dragers multiple system atrophy,primary autonomic failure could all just be the same things. I was diagnosed with Primary autonomic Failure(possible Pots) just recently and am treated with fludro-cortisone,beta blockers and salt etc Also the waist high surgical stockings. My Neurologist says they can only watch for a long period of time and treat symptoms. It is extrenely rare and they are watching me for shy-dragers. That, from what I can understand from my G.P. is what happens with these disorders. Takes time to reach a full diagnosis of Shy-dragers or M.S.A. and most of the time it is diagnosed after an autopsy. I hope this helps but if you could add anything to help my understanding,as I am new at this,diagnosis.(Not the debilitating symptoms), I would appreciate any input. My Neurologist told me that I must know my own disease as there won't be many (in the medical profession) who will know it. So, from that I have had to do a lot of research etc. As well as know my body well., and know my limitations etc.
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